Tuesday, December 18, 2012
Today we found out Matthew has mild cerebral palsy. As I have written before on this blog, we've suspected this for awhile now. We had to wait six months to get into the pediatric neurologist but we've been treating his symptoms with weekly occupational therapy and a home program as well for the past five months. Mostly Matthew's cerebral palsy affects his muscle tone, strength and balance. He does do some quirky things as well but the neurologist pointed out that these are compensations he's made to adjust to how the cerebral palsy makes his body feel. We had his blood tested today to rule out any muscle enzyme issues but the neurologist is fairly certain that isn't it. Once the tests come back, Matthew will have an MRI, to show if there is any brain damage. The MRI may not show any damage but he will still have a CP diagnosis. Physical therapy and a special speech therapy will be added to his therapies to help strengthen the various muscle groups that are affected. A few people have asked me how I feel to actually hear the confirmation from a medical professional that our son has cerebral palsy. Overwhelmingly, I feel grateful. Looking back on how Matthew's birth played out, I am so grateful that his cerebral palsy isn't more profound. In so many ways you would never even know that he struggles. I am grateful for experts and therapists and millions of opportunities that our son is afforded that will help him be the best Matthew Simpson he can be. I do feel a little guilty and a little sad that we didn't put this together earlier but feel that every time Matthew hit a bump in his development, we've met it head on, getting him therapies and support when it was needed. We have never buried our heads in the sand. Do I wish I could go back to that delivery room and changed the reality of what happened in that OR? Yes. At the end of the day, thinking of all the things you would do differently doesn't really serve any purpose. Instead we choose to move forward, figure out a therapy schedule, explain things to Matthew without freaking him out because there is no reason to freak out. My boy's got this.
Posted by Susan at 1:53 PM